Our Leadership Team
RareiTi™ was founded by leaders who envisioned and helped build the global managed access industry, along with experts in rare diseases, technology, data science, medicines management and home and remote care services.
Co-founder, former CEO of IDIS and Healthcare At Home
Natalie started her healthcare career in the pharmaceutical industry at Janssen (J&J) and then as CEO built IDIS into the global market leader in delivering international managed access programs for physicians and the biopharmaceutical industry. In 2014 she joined Healthcare at Home as CEO, executing an operational turnaround. Natalie is Vice Chairman of Global Genes and holds a number of non-executive director and strategic advisory roles with healthcare technology companies. She is a former Health Investor Top 50 Executive (2015), a former EY regional Entrepreneur of the Year, recipient of a First Women award (2008) and Sunday Times Fast Track 100 (various).
Co-founder, former CEO of Siren Interactive and Chief Patient Officer of Vitrisa Therapeutics
Wendy is an innovative leader working for over 20 years in Rare Disease at the intersection of advocacy, technology and business. She founded, grew and transitioned Siren Interactive Corporation to Dohmen Life Science Services (now Eversana) as part of a vision to integrate patient level insights into the drug delivery continuum. She is the mother of a child with a rare disorder and publisher and co-author of Uncommon Challenges; Shared Journeys- Stories of Love, Hope, Community by Rare Disease Caregivers. Her background includes 4 consecutive years on the INC 5000 fastest growing companies list, being recognized by PharmaVoice magazine in 2012 AND 2015as one of the 100 most inspiring people in the pharmaceutical industry culminating in a lifetime achievement Red Jacket award in 2017 and by MedAd News with a Manny award for her work in rare disease.
RN| CEO, Former Head of Clinical Nursing at AstraZeneca and Head of Nursing at Nutricia
Alex Evans has over 20 years of experience in the pharmaceutical and healthcare services industry. She is a registered clinician with senior level experience in clinical quality and evidence- based practice and a passionate leader of patient-centered care solutions. Alex’s career includes 13 years at Astra Zeneca and 5 years at Biogen Idec in both clinical and commercial roles. As an RN, Alex was former Head of Clinical Nursing at Astra Zeneca and former Head of Nursing at Danone Advanced Medical Nutrition (Nutricia).
Alex joins RareiTi from Europe’s leading clinical home care provider, Healthcare at Home, where she was formerly Director of Quality and Governance and Regional Clinical Operations Director. She was responsible for delivering great commercial results through leading edge regulated patient support programs across a range of complex therapy areas and rare diseases.
Chief Financial Officer
With a background in risk management and mergers and acquisitions and with experience building the financial infrastructure necessary to support the launch and growth of an enterprise, Lisa brings more than 30 years of practice to her role at RareiTi.
Lisa grew her skills through many years and roles with Wells Fargo, ultimately serving as Midwest Division Manager and head of the bank’s Chicago leadership team. Along with her husband Lamar, Lisa capitalized and built an architecture and design practice that grew to 30 professionals and positive cash flow within its first year. She negotiated the sale of a majority interest in the firm and oversaw the integration with the operations of its new parent entity. Lisa remains committed to solving the most pressing issues of her community through her work on the board of United Way of Metropolitan Chicago and as an active member of the Chicago Network and the Economic Club of Chicago.
Dr. Olivia Kessel
Chief Medical Officer, UK
Olivia is a medical doctor and entrepreneur with experience in the delivery of digital health initiatives in Africa and is founder of EVOLVE – CARE, a digital health coaching company. Olivia was formally Director of Patient Services for Humira at Abbvie in Europe.
Chief Data Officer
Adam is passionate about data and e-Health. He has held a number of global Biometrics leadership roles within pharma and the clinical arena, including previously being Head of Medical Data Management at Idis.
Our founders recognized that while the needs of biopharma companies, clinicians and patient communities have evolved significantly, managed access offerings haven’t kept pace.
The gap is especially striking in rare diseases. The number of investigational and approved medicines has grown from dozens to hundreds, and the number of identified rare conditions has expanded beyond 8,000 – and yet the needs associated with each disease community and treatment modality are often quite distinct.
Managing access to therapies and care for rare disease patient requires a unique blend of global reach, personalized services, in-home and remote follow-up, and technology and real-world data to tie it all together.
RareiTi was created with these distinctive needs and capabilities in mind.
Global Operational Infrastructure
The COVID-19 pandemic is having significant impact on clinical trials globally. Many trials face suspension or closure due to clinical priorities and the impact of social distancing and quarantine.
Clinical trial patients with a rare condition face great challenges; being part of a clinical trial when living with a rare condition can often be the only lifeline available, offering the chance to access novel therapies that could improve life enormously. During the pandemic, not being able to access novel therapies could have a major negative impact on health, disease progression and mortality. In addition, progress toward an approved therapy should not have to be completely stalled because of a lack of ability to collect relevant data.
RareiTi™ needs to collect and process personal information in order to deliver services that provide medicines and support under regulated activities. We run joint programmes with our patient’s referring physician/centres and the pharmaceutical manufacturers as part of our pharmacovigilance and drug safety obligations. We also participate in highly regulated activities that require the sharing of your data for clinical evidence purposes outside of a clinical trial.
We are committed to being transparent with you about our use of your personal information. We will always keep your data safe and secure and only use it for the purposes it was obtained. We will ensure we record the lawful grounds for the use of your data and keep you informed of any changes.
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